Zoey likes to keep things interesting!

Well, with things holding steady the past few days with consistent weight gain and nothing else changing much, Zoey apparently got bored and wanted to shake things up a bit this morning.  As with everything else, she dictates when things happen with her and today was no exception.  She decided she was ready for her central line to come out and so it did.  I noticed some pink fluid-like substance under her dressing where the central line goes in her arm.  I asked her nurse to look at it and she said it wasn't like that an hour and a half ago.  She called in the transport nurses who have more training with the lines who took one look at it and wanted the Drs called in to also look.  Her initial thought was that the lipids and TPN going into that line were now coming out from the entrance sight and possibly mixed with a little blood to make it pink in color.  The Drs came in and looked at it, and without hesitation said, "Take it out."  So there went Zoey's supplements...good news for Zoey's liver, bad news for Zoey's weight gain.  The nice part is there are hardly any lines connected to her anymore.  They will be closely monitoring her glucose level every three hours and give her more through a peripheral line if necessary for extra calories.  They are increasing her milk every 8 hours to get her up to the necessary amount so she's not getting dehydrated or under fed based on her current weight.  They expect her to lose some weight over the next few days, and by some weight I mean a lot of weight, since she's still 4 ccs/hour short on her feeding level.  Hopefully she can tolerate her feeds and gain it right back.  Another good part is that they are re-instilling everything that is coming out of her stoma so the concern with her dumping is not as high as it's been in the past since it'll just get put back in the bottom half of the intestines for further absorption.

Other than that, nothing much is new.  I did not disclose when her tentative surgery date was set for a few days ago which was good because it changed already.  Now with her probable weight loss, and then eventual gain, it's possible it could get changed again and only time will tell.  Once we are more firm on a surgery date we will let you know.  In the meantime, we could use all fingers and toes crossed and another wave of prayers for her to keep making progress with her weight so we can get her put back together.  She is looking happy and healthy and can enjoy her baths even more now since her arm won't have to stay out of the water with that line being out.  And I swear Zoey can already understand what we're saying and she has one hell of a sense of humor because the timing of her faces and smiles is impeccable and way too frequent to just be coincidental.