Zoey is experiencing a lot more energy and I feel like I could tell that she was bigger after only a couple of days of not seeing her. Was this because I knew she gained so much weight the other night or because she actually looked fuller? One will never know but you can tell she's finally putting on weight! :-) Her surgeon was happy to hear the reports that the re-instilling has been going well since he was on vacation all of last week and she's been tolerating the level they started her at. He wants them to increase the amount little by little now and hopefully be re-instilling all of her output by the end of the week. This will just contribute to her weight gain. That being said, they also hope to increase her milk and decrease the TPN as we do this since she should be able to digest more of the milk and since this is the direction her stomach will need to go in the near future. I sat holding her yesterday and prayed out loud with her for a while. It's like we just talked to God and I said what we were thankful for and what we feel we still need help with. I asked Him to keep watching over her and to help her through the rest of this journey. I'm not sure if this was more for her or myself but I certainly felt more at ease after that.
They have also been keeping an eye on her central line in her arm since it's been in there for a while now. This is what her daily IV supplements goes through so it's very necessary still but we're hopefully nearing the end of needing it. The pressure on the line has been a bit erratic lately and we're hoping that doesn't mean there's a clot at the end of the line preventing stuff from flowing out of it. They plan to do an x-ray tomorrow to check it just to be sure since they had to remove the first one from her leg for the same reason.
Zoey had a massive weight gain 2 nights ago but then didn't gain anything last night which was fine and expected. So we weren't sure what tonight would bring. She gained 115 grams tonight. YAY since 30 grams is still the goal! We are happy that the re-instilling seems to be working so well! She even had a little poop in her diaper so that means all systems are still a go. Her total weight is up to 5 lb, 2 oz so we crossed into new weight terriroty tonight! And if my math is right (no jokes) 6 more ounces (approx 180 grams) gets her to her minimum goal weight for surgery. We are very happy with all of this and things are moving in the right direction!!
The best part of today is that we feel there is some light at the end of the tunnel. The reasoning for this...her surgeon has a spot on the OR table reserved with her name on it. I won't say when it's going to be yet because it is very tentative and can change at any time if her weight doesn't keep going this way but there's at least a date set. Then from there, it's just heal and grow until we qualify to go home. So from here we hope and pray, and pray and hope some more that her weight gain continues in the right direction and that we can keep this date for surgery that has finally been set. Tentatively.
So happy to read another good post :o) 180 grams is all she needs to gain before surgery, and she's putting on 100+ grams at a time? She'll have that covered in no time :o) Congratulations little miss, on reaching your 5 pound weight goal! Keep chubbin it up so you can get all healed up from this final surgery and your body starts behaving the way it should for you. It's very obvious Mommy and Daddy are so proud of you, and so are the rest of us!! Keep doing great Zoey!! :o)
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