Another day of questions & little answers. Getting a few different answers & comments, & guessing for all intents & purposes. Had to vent this evening to the neo-natal head again which resulted in even more second-guessing. Surgeons want to wait, NICU wants to proceed to surgery, surgery residents aren't sure exactly what head surgeon wants to do, still haven't met the head surgeon. Not impressed with the past 2 days. Which I, of course, made people aware of & resulted in a quality representative come see us which our nurse had never seen so that was interesting. In mid typing the NICU charge resident called & said she is not on the official surgery list for tomorrow completely different story from Wednesday as we were told if it was status quo for her levels she'd be going. With that being said her surgeon may completely flip his mind tomorrow after seeing her for what will be the 7th day of only having okay levels by massive amounts of help from the drugs/supplements. It's not that we want surgery by any means on our little girl, however this course of poor & inconsistent communication is beyond tiresome. SO, as of now we get to flip a coin in the morning on what we are doing. I know many people want updates but once again, our schedule, it'll be posted when it gets posted.
Our moment of happiness & joy was when Pastor Tyler from Sally's childhood church, who married us, came down & gave Zoey her baptism in the event this surgery goes down or if anything should happen. It was a really special moment for Sally & I as it brought things to a calm & centered state amid all this craziness. We can't say enough how important it was to us to get this done & and the compassion & sincerity of Pastor Tyler in his willingness to come at a moments notice to visit, to talk, to give a prayer, whatever we needed. Beyond words how much it meant. Got some really great pictures...............but it was a crazy day & I forgot the memory card at the NICU.........tbpl (to be posted later (pretty sure I just made that up))
- Posted using BlogPress from my iPad
Thank you for the updates you do give as you are able to give them. We are praying for Zoey and both of you every day. Praying today that the doctors come to a consensus and agree on a course of action. So happy that your pastor was able to bring you some peace during your storm. Congratulations on Zoey's baptism, may God keep His child safe and heal her perfectly.
ReplyDelete