So we haven't posted anything the past few days because not much has changed with Zoey. She had a number of days where she had amazing weight gains but all good things come to an end. The past 3 days she has lost weight and we are expecting the same tonight because her output was very large today even compared to the past few days. We were talking to the nurse to try and figure out what has changed so she was looking through her chart as we discussed possibilities. Her supplements became oral 3 days ago so instead of going into her veins, they've been going into her tummy through her feeding tube. She seems to not be tolerating this very well and is dumping lots of her input. We discussed this with her nurse on our way out tonight and it will be discussed in rounds tomorrow morning to see if there is something we can do to get her gaining weight again. Eventually she'll have the TPN stopped and will have to have her supplements given orally again but I think we'll have to put the supplements back in the TPN and cross the intolerance bridge at a later date when we have to. For the week we should still be up in weight even if she drops a lot tonight. 
Ray and I have been here since Thursday night together so have gotten lots of good quality time with each other and with Zoey. I am grateful for the progress she has made this week and just hope we can keep going in that direction next week. Apparently Zoey is telling us already that she doesn't like change. She slept a lot today so we think she was trying to conserve all the calories that she could. Awake or asleep, I still loved holding here LOTS this weekend!!
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