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| Our peaceful little babe |
I immediately headed over to the NICU to get everything that's been going on clarified & figure out if there is an up-to-date plan. There wasn't other than a slew of tests for Zoey today. The short version of conversion & concern today was leaning towards Zoey's liver actually being diseased to the point of needed a transplant & that being the over-riding concern all day & having discussions several times with docs concerning that. There has been massive concern & just conjecture why Zoey hasn't gained weight over the past week & what has felt like throwing darts at the board at many times. Numerous specialists came by & checked in & gave opinions & waiting for her ultrasound results & on & on & on. It was a ridiculously stressful day. The fellow doctor who has made a concerted effort over the past few weeks to clarify our questions & communicate with the issues we've been having with our resident dropped in several times to make sure I was on the level as there were a lot of tests & a lot of people in & out. Days like this having Sally at work & handling everything by myself with the repercussions of what these tests could mean was a lot to deal with. I was sending text messages to her & trying to communicate as best as possible as she does the same when I'm home & she's there. Not ideal but we deal with it.
Just as I was walking in the door the fellow doctor called with great news on many levels, the most important being that Zoey's ultrasound was "not impressive," finally having that phrase be used as a good thing was a welcome change. Being scared all day about having Zoey very likely going to go down this course of a certain rare liver disease to have a problem with her sodium that they're going to change courses on treatment was the best phone call I've ever received. So they are changing her to a new fortifier that will be jacking up her lipids in another attempt to hopefully get her weight gain going again.
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| My Picc Line that was in for 6 weeks |
So, with that huge news off our plates for the immediate moment we have a new plan to go with & put our faith in. As a bonus, the fellow also removed our resident from Zoey's case & replaced her with another resident who we've dealt with a couple times that we really like & actually communicates. She also seems to be a lot smarter and can explain all the "what and why" of everything that's going on or at least can confidently say she doesn't know but will find out and does so. Amazing how a day can flip on itself multiple times & end up being okay at the end of it.
Her eye test is scheduled for tomorrow however they won't be doing the surgery unless it's an emergency, so it may be Wednesday, may be Thursday, we & the NICU really don't know as it goes by the eye doc's schedule which they admittedly haven't had communicated well with them. Hopefully Wednesday or Thursday will be the day as Sally will be there.
Sally...lots of hugs to you hun. I know the feeling you're talking about. Just remember that you and Zoey are both doing great, and both of your bodies are still changing from when she was born. Those goofy hormones of ours really pack a wallop sometimes, and they'll catch you off guard. Pack on top of that everything you're going through, it's no wonder you'd cry. You'd be abnormal if you didn't I'd think. Zoey...you keep your Mommy and Daddy smiling with your fishy baths and packing your chub on :o) Hopefully the eye surgery goes well and the three of you can move past that with relative ease. Prayers as always. Ray...keep being the cuddly rock your girls depend on :o) Nothing about any of this is easy, but you've proven to be there for them every step of the way. Randy and I pray this is almost done for all of you, and the next worst thing you have to worry about is a boo-boo to Zoey's knees from falling down walking. Congrats getting your pic line out, let's hope that's how that situation continues as well!!
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