Not much for answers, more tests

So one of the biggest things we've been focusing on has been the results of the HIDA scan done Wednesday and part two Thursday.  On the way home around 5:30pm, something told me to call and find out if they had the results yet as they hadn't by the time I left this afternoon.  The NP told me first that she does have biliary atresia but then called back after I lost it crying in the car on the way home and clarified saying the results are consistent with biliary atresia but it also fits her having TPN cholestasis which they say is more likely.  This has been a concern since day one of her having because of needing to be on TPN to grow.  So now, Zoey will have a liver biopsy done because this is the only way to determine which of the two liver problems she has.  If it is the TPN cholestatis which we would prefer, they have to keep her on the TPN to help her grow but then do their best to get her off of it as soon as they can and her body will work out the problem after that.  On the up side, the ultrasound she had showed she does not have gall stones and that her gall bladder looks healthier than the last time they looked at it which was 2 or 3 weeks ago.

After hearing the news of her liver, Ray ended up driving there in the middle of the night because he couldn't sleep.  I was about 10 miles from Eau Claire when I got the call and just about turned around right then and there to head back.  I realized in the long run this wouldn't help anything other than my immediate emotional state and to save the sick time/FMLA hours for leave with her when she has surgery or gets to come home.  Zoey is still set to have her eye exam Friday morning and today might be the day they do laser surgery on her right eye.  Ray was planning on being there for that anyway.  We hope she has surgery today so that we can work on her weight gain because every time she has the eye exam or any other procedure they typically have to stop feeds for a number of hours which doesn't help.  Ray also wanted to be there to try and find out more definitively when they think they might do the liver biopsy.