Zoey and I took a trip down to Rochester again on Monday for her follow up appointment with the GI Doctor. She looked at her labs from the past month and decided to discontinue her meds to help her liver. After more blood work, her bilirubin was down to 1.2 so a little higher than they'd like but figure over the next month or two that it'll resolve itself the rest of the way. The Dr felt this would be better than continuing her meds for a couple of weeks since she's so close. They'd like her bilirubin below 1.0. She also looked at the ultrasounds that were done last week. There's a little spot on her liver which she chalked up to a little birth mark that will go away over time. It was 4mm a couple of months ago, and was 3mm last Wednesday. She suggested just having an ultrasound done in 6 months to a year to check it again before putting the issue to rest and also just for peace of mind. GI doesn't really even need another follow up appointment, just blood work done here in a month or two and another ultrasound done in 6 months to a year. So that was really great news and the Dr was extremely pleased with how she's doing!
Zoey is still doing well with oral feeds. She's becoming more alert and really loves looking at stuff. She just love taking it all in and really examines people and places around her. And she LOVES and really responds to music. Oh, and I almost forgot...she was weighed again and came in at a whopping 7lbs 2 oz! That is an ounce a day weight gain since Wednesday so I think the new feeding schedule they gave us is really working. And we're noticing these little chipmunk cheeks coming in too! The g tube does better some days and leaks other days so that's still frustrating. July 10th can't come soon enough! :-) However I'm in no rush for the days to go by because I have to go back to work in less than 2 weeks and am dreading it. I wish I could stay home forever with Zoey! But that's not possible for now so just something I have to deal with. Just soaking up every minute with her until then!
Zoey and I took a trip down to Rochester again on Monday for her follow up appointment with the GI Doctor. She looked at her labs from the past month and decided to discontinue her meds to help her liver. After more blood work, her bilirubin was down to 1.2 so a little higher than they'd like but figure over the next month or two that it'll resolve itself the rest of the way. The Dr felt this would be better than continuing her meds for a couple of weeks since she's so close. They'd like her bilirubin below 1.0. She also looked at the ultrasounds that were done last week. There's a little spot on her liver which she chalked up to a little birth mark that will go away over time. It was 4mm a couple of months ago, and was 3mm last Wednesday. She suggested just having an ultrasound done in 6 months to a year to check it again before putting the issue to rest and also just for peace of mind. GI doesn't really even need another follow up appointment, just blood work done here in a month or two and another ultrasound done in 6 months to a year. So that was really great news and the Dr was extremely pleased with how she's doing!
Yay for awesome progress!! I know exactly the feeling of wishing you could stay home all the time with your sweet baby, it's rough going back, but I tried to remember I was doing it to give my kids a great life full of opportunities and fun memories, and that helped. Sometimes. LOL Enjoy your time to the fullest, looking forward to hearing more great progress updates!! She looks wonderful and happy!! So happy for all of you!!
ReplyDelete