Our journey through dealing with preeclampsia, HELPP syndrome, premature birth, Necrotizing Enterocolitis, the Jejunostomy procedure, the trials, tribulations, joys & sorrows of the process & some interesting bumps in the road.
Wednesday, August 14, 2013
Sunday School kids are Amazing!
A VERY HUGE THANK YOU to all the Sunday School kids and their families for bring in offering money over a pretty long period of time to be donated to Zoey and our family. I remember many years ago sitting in the West Wing and other areas of the church attending Sunday School for my whole life until I graduated from high school. What a special and generous thing for you kids to do! I'm so thankful that the Sunday School kids of St. Paul's are still learning about giving to others as I remember doing that very thing and bringing food items, money, and other things for people in need when I was young. There just are not enough words for the kindness St. Paul's has shown us throughout this journey! Thank you, Thank you, Thank you!
Still growing
Over the past month, Zoey has continued to grow. We just went to the Doctor yesterday to get another immunization and some follow up lab work done. She weighed in at 10 lbs, 13 ounces. They are happy with her progress there since she is finally on the growth chart in the .01 percentile for her weight. Her lab work looked great too showing progress in all areas related to her liver functions. Her bilirubin level was also much lower than a couple of months ago and has stayed down around .3 so that's great improvement also.
The spot on her tummy is still working on healing. Some days it looks like it's closed then other days it appears to have opened up again. It doesn't seem to bother her for the most part so we'll just give it time to do what it needs to do.
Overall, Zoey still acts like a happy, healthy baby. This past week has been a bit of a struggle with lots of crying and just overall not being content. We've tried many things trying to figure out what the cause is since she's normally so calm. We've adjusted her feedings to less milk but a little more frequently and that seems to have helped some.
She never ceases to amaze us and continues to do things like try to stand on our lap with little support. She likes to grab things and bring them to her mouth now and even got her pacifier back into her mouth the other day all on her own. We love seeing her develop and learn new things.
We had our NICU reunion a couple weeks ago. It was nice to see many of the nurses that worked with her. It was funny because they laughed and said they didn't know how to hold her wiggly butt now because she was sooooo big! That's literally the only place we'll ever go where they will tell us she's big. :-D It was a nice time though and we saw some of the families that were there while we were so it was neat catching up with some of them as well. We also left feeling very blessed (not that we ever didn't) because there were so many kids that live every day struggling with different things and then there was our little peanut just being her sweet self. We were reminded how fortunate and blessed we have been through all of this.
Zoey is now just over 7 months old. We are trying to find a nanny currently to keep her out of daycare until her immune system can build up some. This is proving to be quite a task because we don't want to leave her with some inexperienced young person. The reference checks have been heaven sent so far as lots of things have come to light making me not want to hire some. Thank goodness for honest people!! But we're hopefully coming closer to finding someone because we're quickly running out of time. I have faith though that we'll find the perfect solution and it will all work out in the end.
We have our big NICU follow up clinic day in a little less than a month so more updates to come then. Thanks again for all the continued thoughts and prayers. I will add some pics to this soon!
The spot on her tummy is still working on healing. Some days it looks like it's closed then other days it appears to have opened up again. It doesn't seem to bother her for the most part so we'll just give it time to do what it needs to do.
Overall, Zoey still acts like a happy, healthy baby. This past week has been a bit of a struggle with lots of crying and just overall not being content. We've tried many things trying to figure out what the cause is since she's normally so calm. We've adjusted her feedings to less milk but a little more frequently and that seems to have helped some.
She never ceases to amaze us and continues to do things like try to stand on our lap with little support. She likes to grab things and bring them to her mouth now and even got her pacifier back into her mouth the other day all on her own. We love seeing her develop and learn new things.
We had our NICU reunion a couple weeks ago. It was nice to see many of the nurses that worked with her. It was funny because they laughed and said they didn't know how to hold her wiggly butt now because she was sooooo big! That's literally the only place we'll ever go where they will tell us she's big. :-D It was a nice time though and we saw some of the families that were there while we were so it was neat catching up with some of them as well. We also left feeling very blessed (not that we ever didn't) because there were so many kids that live every day struggling with different things and then there was our little peanut just being her sweet self. We were reminded how fortunate and blessed we have been through all of this.
Zoey is now just over 7 months old. We are trying to find a nanny currently to keep her out of daycare until her immune system can build up some. This is proving to be quite a task because we don't want to leave her with some inexperienced young person. The reference checks have been heaven sent so far as lots of things have come to light making me not want to hire some. Thank goodness for honest people!! But we're hopefully coming closer to finding someone because we're quickly running out of time. I have faith though that we'll find the perfect solution and it will all work out in the end.
We have our big NICU follow up clinic day in a little less than a month so more updates to come then. Thanks again for all the continued thoughts and prayers. I will add some pics to this soon!
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